In this episode, Sheila Colclasure, Global Chief Data Ethics Officer of Acxiom, discusses ethical data use and the impact of GDPR on healthcare data. In this digital age, data is of great benefit to humankind, but there is also a dark side when it comes to ethical use of data. In a world of massive data and advanced analytics, it is important to carefully balance the benefits of data, the status of data, and the rights of an individual. Without this, we could accrue commercial interest at the expense of humans. It is, therefore, important to have a construct and a governance methodology to maintain the balance. Ethical data use is not just about minimum compliance but also about whether it’s “just” and “fair”. GDPR at its heart is an accountability law, and it’s more specific than HIPAA. It brings a level of transparency and trust in the digital marketplace. Listen to the podcast to know more.
As Global Chief Data Ethics Officer for Acxiom and LiveRamp (an Acxiom company), Sheila directs the enterprise data governance, protection, and privacy program and the external data-focused global policy development for botfh organizations. Designed around Ethical Data Use (EDU), Sheila runs an accountability-based, 360° program that also covers government affairs, consumer affairs and related public relations.
She is recognized as a global thought leader on applied data ethics, consumer advocacy and information policy. She participates in numerous domestic and international efforts to help develop effective data- policy, establish industry best practices and achieve maximum harmonization of information policy across the world. With extensive knowledge of laws governing the collection and use of information worldwide, she is sought out by policy makers, regulators and government agencies for her views on the ethical use of data and how to address the complexity of operationalizing next-generation data governance for the connected and digital data-driven ecosystem. Sheila is a 2017 Presidential Leadership Scholar and was recognized by CSO as one of the “12 amazing women in security.”
She is frequently interviewed by the media on ethical data use, data protection and data governance and has advanced thought and practice leadership with government authorities and the industry in many forums, including the Consumer Electronics Show’s Digital Health Summit, US Department of Health and Human Services, Dublin Tech Summit, Global Data Transparency Lab, IAF Digital University, and Ibero-American Data Protection Network. Sheila has also taken the stage at Forrester analyst events, adExchanger events, International Association of Privacy Professionals Global Conferences, Digital Advertising Alliance Summit events, Data and Marketing Association annual conferences, Philly Phorum, Conference of Western Attorneys General, National Association of Attorneys General, American Legislative Exchange Council, American Bar Association annual conferences and Marketing Science Institute.
Sheila serves on the advisory boards of the Information Accountability Foundation (IAF) and the Future of Privacy Forum (FPF) and is corporate liaison to several industry standards-setting groups and research and policy development groups, including the Center for Information Policy Leadership, Digital Advertising Alliance, Mobile Marketing Association and Cambridge Privacy Forums.
Sheila provides support and consult to the Acxiom and LiveRamp client and partner ecosystem – some of the largest marketers in the world – on effective data protection governance and the ethical use of data as a strategic business essential. Her primary focus includes enterprise-wide applied data ethics, ensuring compliance with legal and co-regulatory requirements and development of and compliance with Acxiom’s own leading-practice data ethics policies. She specializes in data protection, use and governance laws U.S. FCRA, GLB, HIPAA, Privacy and Safeguard Rules, Telemarketing Sales Rule, CAN-SPAM, and the European Union General Data Privacy Regulation, ePrivacy Directive/Regulation. She has developed and implemented an annual data protection and governance audit function that is widely regarded as the best in the industry.
Prior to joining Acxiom, she worked for the U.S. Senate, and then managed congressional and political affairs for the American Institute of Certified Public Accountants in its Washington, D.C. office, focusing on legislative and regulatory initiatives as well as directing its political action committee. Sheila has a master’s degree in communications, specializing in business and political communication
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